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he used to be Somebody: A Journey Into Alzheimer's Disease Through the Eyes of a Caregiver

Contents: click on titles below v

Facts about Incontinence & Alzheimer's

It's Just Poop People!  How Bias influences attitudes towards this level of care.

Challenging the Politically Correct

Glossary of Terms

Been There, Tried It, Didn't work

I Could Never...

Stages of Incontinence Care
1. Supervision Stage
2. Taking Charge Stage
3. In-Charge Stage

Organizing The Bathroom

Organizing the Bedroom for Incontinence Care 

* Supervision Stage

* Taking Charge Stage

* In-Charge Stage

Dressing for Incontinence Care

Pads, Tools and How to Use Them

Caregiver Stories/

Naomi and Ruth

Excerpt from:  He Used To Be Somebody

A Husband's Perspective on Incontinence Care:  John and Dorothy

Ready  Aim  Fire: A Wife's perspective on Incontinence Care

A Daughter's Perspective on Incontinence Care



Excerpt from - "He Used to be Somebody:"   Moments of love during trying times.

 

Products 

Home Delivery Incontinence Supplies http://www.hdis.com

 

Incontinence

Everything You Need to Know and Hoped you'd Never Have to Ask!

"Shame is the apprehension of a vision reflected from the surface of opinion – The opinion of the public."

"The Frogs" by Aristophanes


There Has To Be A Better Way

Can you imagine, the feelings of fear, rejection, abhorrence, and reluctance that surge through a caregiver when they realize their family member cannot toilet themselves without help any longer?

Can you imagine, the grieving the caregiver experiences as the hope that it isn't really Alzheimer's is dashed, because incontinence is proof positive that this is a progressive, terminal illness and incontinence care will be the lot in life until that person dies?

Can you imagine, the effort it takes to stuff the fears, the rejection of the tasks, the inherent taboos, the grieving and the achievement it is as they talk themselves through it and find ways to cope with it?

These caregivers make this giant leap of faith and surmount all the breeding that has been done to ingrain the taboo we all feel about this level of care only to be faced with a public of family members, service providers, doctors, lawyers and uninvited strangers who, in one look, one comment, one expressed negative attitude, undo all the resolve they've so painfully built up.  

Instead of being supported, their sanity if questioned.

Can you imagine how destructive that is to a caregiver?

Just as a thought!  Instead of saying: 

 "Dad, Mom wouldn’t want you to do this for her."   

Why not try:    

"Dad, I want you to know how much I admire your care of Mom.  You've set a new standard of behavior in this family and I love you for showing me this side of you.  How can I help?"

...or:  

"Marilyn, you don’t have to sacrifice your life for Gunter.  This is too much for you to do."  

Why not say,  

"Marilyn, I am in awe of the way you care for your husband.  I only hope I can find the same strength if I ever have to face such a challenge.  How can I be of help to you?"

What a difference it would make.  In this way love, regard, awareness, and sensitivity are expressed and the door is open for a more receptive appraisal of what can then be done to be a real help.  How much easier it would be for the caregiver and their family member, if all the parties involved in this drama saw incontinence care, and the tasks associated with that care, as an achievement and something to honor.

~*~


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