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Physical Care 

 The Stages of Care: From the Caregiver's Point of View

The Team Approach to Empowerment and Options

Turning the Home into a More User-Friendly Environment

Facing the Final Days

 The Stages of Care: 

From the Caregiver's Point of View

Utilizing the 'Stages of Alzheimer's,' graphs, as researched by Dr. Barry Reisberg and Lisa P. Gwyther, which deal with the symptoms as they occur throughout the disease, I approach the care problems from a caregivers point of view.  Knowing in what order the symptoms occur is helpful but it doesn't aid your understanding of the process that is occurring.  This section attempts to give the caregiver reasons why the changes occur and offers a new way to look at and solve the problems that result from those changes/symptoms. 

The Stages of Alzheimer's Disease

Figure I, "The Functional Assessment Staging of Alzheimer’s Disease, FAST)."  © Dr. Barry Reisberg

Figure II, "The Stages of Deterioration,"  

©  Dr. Barry Reisberg

Figure III "The Functional Stages in Normal Human Development and Alzheimer's Disease" © Dr. Barry Reisberg

Figure IV, "The Stages of Symptom Progression In Alzheimer’s © Lisa P. Gwyther

 

Books I Found Helpful

The Stages of Care: From the Caregiver 
Point of View

The Three Stages of Caregiving 

The Assisting and Supervision Stage

The Taking Charge Stage

Behaviors and Symptoms in the Mid Stage

The In-Charge Stage

Dressing for the Three Stages of Care

Four Things I Learned 

Caregiving in Terms of Parenting

Preparing for Change and Dealing with Resistance.

Sometimes, A Bruise Is Just A Bruise

Care Giver Stories

  

 THE TEAM APPROACH TO

Empowerment and Options

We caregivers need to be empowered, to see our tasks as tasks and not as some very base reflection of drudgery if we are to survive.  And, our people need us to reclaim their humanity from a world that tends to see them as already dead.  What we are, is ordinary people doing an extraordinary job under very difficult circumstances and in that respect we are nothing less than heroic.  And don’t let anyone else tell you differently.

This title page lists:

  • The various service providers, their job duties, assessing their qualifications, and their ethical obligations 

  • How to set up a treatment team and establish a treatment plan

  • How to assert your role as leader of your treatment team 

  • How to document the plan, organize your records, and prepare for meetings 

  • How to empower yourself as the primary caregiver

I point out pit falls to look for and avoid, and use caregiver stories to emphasize how bias can undermine even the best of treatment plans.

The Team Approach to Empowerment and Options

The Team:

Getting Started

The Caregiver as Case Manager

What is Alzheimer's Disease?

Reflections on Reflections

The Stages of Alzheimer's Disease  

(How to use the reference material below)

Putting Together A Case History/Journal

Blank Journal Pages: How to set up your own case history

Turning the Home into a More 

User Friendly Environment

 

90% of the behavior problems that arise during the mid-stage of Alzheimer's can be lessened by altering their environment, examining attitudes used in approaching them during a crises, and being prepared to deal with the inevitable.  One must learn to step out of the world you know and into the world they now live in.  It is a world that is a very fearful place indeed and how you speak to them, touch them, approach them, work with them and convey love and acceptance to them makes all the difference. 

Turning the Home into a More User Friendly Environment

 

 

 

Organizing the Bedroom

Organizing the Bathroom

Excerpts from "He Used To Be Somebody:  

 

 Facing the Final Days

This title page deals with some of the myths that surround a death from Alzheimer's and it will contain caregiver stories of incredible poignancy that occurred when their family members died. The point of this page is this:   If you believe in a soul, you must believe that the soul doesn't get Alzheimer's any more than it gets Cancer.

Facing the Final Days

Is Life A Boon?

Dear Caregivers

Alzheimer's!  It is just another way to die!

(Three Caregiver experiences)

 

Caregiver Stories

A Husband's Perspective on Incontinence Care:

A Wife's perspective on Incontinence Care

A Daughter's Perspective on Incontinence Care

Naomi and Ruth

Caregiver Stories

John and Dorothy and the Restaurant

My Grandfather, My Champion

Sometimes, A Bruise Is Just A Bruise!*

Tom and Mom

Tom and the Police

 

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